Showing posts with label It's About Time MBC. Show all posts
Showing posts with label It's About Time MBC. Show all posts

Sunday, September 25, 2016

Real Breast Cancer Awareness


Pink merchandise
Me in 2010
in October seems fun.
Cute little trinkets
to display, and to wear,
promoting Breast Cancer Awareness.

By spring there’s the tintinnabulations of joy.
People donning pink boas,
pink shirts and pink socks.

Walking and running,
raising money for research
racing to end this disease.

Celebrating survivors,
the months passing quickly,
some 5, 10, or 20
years in remission.

Year after year
the excitement continues.
You can beat this!
You’ve got this!
Encouraging words
for each new diagnosis. 

Mastectomies, lumpectomies,
radiation and pills,
chemicals rushing through veins,
will this save me?

Treatment now ending,
nurses harmonizing in song,
“Hey now, hey now,
the chemo’s all done.”

Smiling while taking
the balloons you are given,
ending the hugs,
heading for home.

Releasing balloons
sending them into the sky
lightening a burden so heavy,
saying goodbye to your cancer.

Saving the ta-tas,
touching your tits,
sexualizes, trivializes
your cancer--it hurts!

Harming the cause of
Breast Cancer Awareness.
Down-playing how serious,
making people complacent,
keeping their money instead of donating,
paying little attention to tax payer funding,
thinking breast cancer is no longer killing.

The hushed, dying voices
of those now stage 4,
ruining the party,
knowing the reality,
not everyone is saved.

Education, elucidation
must be an integral part
of the awareness campaign.

Reaching and teaching,
so everyone knows,
more money is needed
spurring research ahead
creating more drugs,
allowing more living.

Please know that breast cancer
is not always a lump,
could be dimpling,
a firmness or thickness of skin,
any redness, nipple changes,
or discharge of yellow.

Thousands upon thousands
will die every year.
Not only women, men too!
of all different ages,
suffering—mentally, physically,
unimaginable pain.

Mechanisms inside,
mechanisms outside
of breast cancer cells
untamable, unexplainable.

Groupings of ER’s and PR’s
and HER 2 neu’s
-- estrogen, progesterone,
human epidermal growth factor 2.
Positives, or negatives, and combinations thereof
providing fuel
for an unruly beast.

Ducts and lobules, receptors,
proteins, hormones and genes,
inflammatory, Paget’s, Papillary,
breast cancer is not one disease.
It is many, you see.

Mutating cells from the breast break away
taking a ride on the river of life,
delivering their package of death.

Landing in organs where conditions are right
to grow, to mutate, to reproduce, to sleep.
Not dying
--like normal.

Outwitting, outmaneuvering,
unstoppable it seems.
Check point inhibitors,
immune system trickery,
blocking, resisting,
the chemicals infused.
Indefatigable, unreachable, undefeatable,
it thrives.

Breast cells in livers, in bones, in lungs, and in brains,
consuming each organ ‘til no longer working.
It’s still breast cancer;
it is always the same.

Metastatic, late stage, advanced cancer,
whatever the name,
killing all of the people
caught by surprise
--de novo—
stage 4, from the start.

Despite what is thought
early survivors don’t always survive
this wretched, disfiguring,
debilitating, insidious bane,
becoming a part
of the INCURABLES
--like me.

Hope floating away
with the helium balloons
falling and crashing,
back down to the ground,
when hell came knocking
upon my front door.

Life derailed from its course,
stepping into the darkness,
causing memories lost,
by the merciless disaster
of metastatic cancer.

Rendering me sightless,
the pain deep within,
my tears will be falling
for the rest of my days.

When earth opened up,
I stood on the edge,
falling into despair.
The party of pink
for me is now dead.

I’m terminal now,
death found in my lungs.
Threatening to take
my unfinished life.

As the disease spreads,
it continues to change
into millions of cells.
Some working one way,
others another,
in the same tumor.

Which drug will work?
Is anyone’s guess.
Why one patient responds
while another advances
is a scientist’s torturous affair.

The happiness thief,
stealing mothers, fathers,
daughters, sons,
brothers and sisters.
Killing the body
loved by another,
in one to three years.
Sometimes it takes longer
--if you’re lucky.

Can we all be survivors
wearing of pink if we choose?
Can side-effects lessen
from treatments not ending?
Can remissions remain,
no longer fearing progressions?

Our stories continuing
stepping out from the darkness,
no longer invisible,
no longer dying,
but living, YES LIVING!   
with cancer
no longer out of control.
And, maybe, just maybe,
one day living
without.

Tuesday, May 31, 2016

Cancer Research Month Ends

I have been at the hospital today getting my every-three-week infusion. Platelets were at 96,000! Highest they have been in awhile. June brings my scan. The nail biting has begun.

After sitting down for infusion #50 and #33 of TDM-1, I found this tweet on this final day of National Cancer Research Month. #ItsAboutTimeMBC #metastaticbc

2h2 hours ago
Lisa: Only honest convos about the nature of cancer will move $ to research:



Yes, that is me.

I soon wondered how long the month of May has been the month where advocates for more research for all cancers get a better chance of being heard. A few moments later I found what I was looking for. The Alaska Senator, Lisa Murkowski, spoke the words below back in 2008 acknowledging the first year this month was recognized as Cancer Research Month in the United States.
"We're all touched by cancer as evidenced by the more than 10 million cancer survivors living in the US. Cancer research plays an important role in saving lives and advancing progress against the more than 200 diseases that we call cancer. In 2008 Congress became united in a bipartisan show of support to recognize the month of May as National Cancer Month." Find this speech--Here
My words included in the It's About Time MBC tweet are few, but the message behind them is complex. Metastatic breast cancer is deemed incurable. The longer the cancer is uncontrolled, the more complex it becomes in its survival. There are not enough drugs to target each mutation. It is crucial that research is directed toward treatments for people like me, those now and in the future. Prevention, early detection, healthy living, and awareness are good but will do nothing to make metastatic breast cancer a disease that does not equal death within the estimated 3 year--maybe 5 year--life expectancy after a stage IV diagnosis. Only cellular research can do that--so extremely expensive and so very time intensive. Awareness about metastatic disease hopefully will spur more research dollars in this area.

Read this article for a better understanding of why cancer is so hard to cure and why the hype of doing so leads to disappointment.  

May is filled with many awareness campaigns. The list below comes from the American Cancer Society's Website.
An * means the campaign is sponsored by the American Cancer Society.
May appears to be the busiest month for awareness campaigns.

May 2016

Bladder Cancer Awareness Month
Brain Tumor Awareness Month
Cancer Research Month
Don’t Fry Day (May 27)*
Melanoma Monday (May 2)
National Women’s Check-up Day (May 9)
National Women's Health Week (May 8−14)
National Skin Cancer Detection and Prevention Month
World No Tobacco Day (May 31)
World Health Assembly (May 16−21; Geneva)

I hope all of these campaigns are causing dollars to be allocated to the best research possible. Too often it seems much research is spent on prevention and lifestyle choices. While good and necessary, sometimes I feel like that type of research keeps going down the same path and ending up with the same results: correlation does not always equal causation--especially in the breast cancer world of which I am familiar.


May has been a busy month for me with my twins graduating from college and sending one off to spend the summer in Japan. Exhausting but exciting too.