Showing posts with label stage IV cancer. Show all posts
Showing posts with label stage IV cancer. Show all posts

Thursday, December 26, 2019

My Sweet Precious Tucker

My dog died. For anyone who has ever loved a pet you know how unbelievably sad those simple words can leave you feeling. This isn’t the first time I have had to say goodbye to a dog, but it is the first time I felt the dog’s survival was connected to mine.

Tears still fill my eyes during quiet moments when I think about him. I knew he wouldn’t make it through the summer. He was sick because his body no longer worked as it should, and there was nothing I could do to fix him, just like I can’t fix me.

As I was recovering from treatment for stage 1 breast cancer in 2010 with the only visible clue being the shortness of my hair, I began rescuing puppies and kittens from the local animal shelter. Through an organization called Adopt-n-Angel I provided these animals with veterinary care. Once they were de-wormed and spayed or neutered, I would take them to PETCO in Wilmington where the public could meet them and when just the right person met the right dog the magic began and off they went to their new home.

It was on a trip to the shelter that I glanced down into a cage and saw an ugly mutt in need of grooming. At that moment I knew that the new arrival to the shelter would be mine. He didn’t shy away from me when I opened the cage to meet him. One of the staff members of the shelter told me the shaved area on his side was their attempt to cut the mats of hair that covered his body. The plan was to do a little at a time since this poodle mix was in such bad shape, fur wise, and wanted nothing to do with the process of shaving.






After I brought him home, it took three days to rid his body of the matted fur. Underneath I found hundreds of fleas. Poodle fur is not the best hair to have for a young dog traipsing around a muddy hog farm from which he was supposedly found. The dachshund in him—or so we thought--found tremendous enjoyment digging in mud. After the cutting and the bathing, the dog was now clean, white, and huggable.


This new dog brought such joy to my life right from the start: from taking a tennis ball up the stairs in our house and dropping it so he could chase it down the stairs and then doing it all over again, to following me everywhere I went throughout my house. My favorite antic that my new little buddy did involved my socks. He would come into the bathroom as soon as he heard the shower running. Pushing the door open, he would go directly to my socks piled on the floor with my other worn clothing stealing one of the socks and taking it to his bed in the living room. He would chew on it for a few minutes and stop and lay his head on it. It was adorable! at least to me. My youngest daughter discovered that he would bark and shy away from a book she was holding that had a golden retriever picture on it. If shown another book of the same size, he did nothing, but put the front of that book in front of him—just the picture side—the barking began.This new dog to our household, now known as Tucker, was my new friend, and the beginning of 9 years of joy for me.

In time, I found myself thinking—irrationally—that if I kept this dog alive then I would keep living as well. Why I thought this simply baffles me. I am not superstitious or believe in outside forces controlling my destiny, but I was so desperate in my need to stay alive that I wanted to grab onto something that allowed me to imagine having some sort of control of my continued living even if it was logically ridiculous. That is where his survival became connected to mine. It proved to be futile in time, my silliness revealed. I progressed to stage IV. Now Tucker would outlive me, or so I thought.

About a year ago, I noticed my buddy was having trouble getting up and down our front steps. He had been heavier than he should have been for a while, but I never connected it to what I was about to learn. Based on his symptoms of lethargy, overeating, and difficulty maneuvering the stairs plus the noticeable change in how much water he was drinking causing him to urinate in the house, I took him to the vet. A blood test was ordered. The result crushed me. My sweet 8 year old boy had Cushings disease. It is a disease common in poodles and dachshunds affecting cortisol production (stress hormone). The cause is either a tumor in the adrenal glands under the lungs or a tumor in the pituitary gland outside of the brain—didn’t matter where it was; treatment was the same. My research revealed his life expectancy was 1 to 3 years. Treatment with a drug could extend his life, but no way to know for how long. He was dying, just like me.

Drug treatment began. His food intake was monitored and he lost weight. Due to his disease and the added diagnosis of a thyroid condition his hair thinned, his skin darkened and flaked, and his excessive water drinking continued. Urinating on the floor became the norm—luckily our floors are not carpeted. I began laundering towels everyday because of the clean-up required. 

He looked worse and worse as the months moved along. Weekly baths became necessary. Overall he didn’t appear to be in pain though I have no way to know for sure. Then one morning in July, he didn’t want to move upon awaking. A few days before, he had not finished all of his meal. On this morning he didn’t want to eat at all. I hated what I felt I should do at that moment. I knew this day would come. It hurts so much to think of it now as it did then, but I was terrified to watch him suffer as he died. The call to the vet was made.

The next afternoon, I took him. The emotional pain was building inside of me as each moment passed. The needle to relax him entered, he yelp from the pain of it. I couldn’t turn back. All I could do was hold his sweet face in my hands telling him how sorry I was and how much I loved him. It has been many weeks. My eyes still spill from the sadness of it all.
My Sweet, Precious Tucker

When it was over I was such a mess. So much so that the vet tech asked me not to drive home until I could do so safely. My sweet, precious friend was gone. I sat in my car and wept. Tucker lie in the back. The drive home was quiet with an occasional sniffle and an, "I love you, buddy".

I’ve missed many months of blogging and writing. For the first time in my life, writing wasn't my go to in order to deal with my emotions. I avoided it simply to avoid feeling my emotions. Sadness has been hanging over me since my scan showed possible progression then the loss of Tucker making my sadness greater. In September, my married life became . . . well, I will say "unpleasant" but that is too kind a word. From that point, I became determined to keep myself busy. That way I could limit how often I thought about it all. Having stage IV cancer and all that surrounds that is bad enough but throw in more of life’s struggles on top of that and I start to wonder how long I can continue to keep pushing through it all without crawling in my bed and just saying, “To hell with it”. I love life, however, what I don’t love is how sad the events of living can make me feel. Somehow, though, I keep going. Work keeps me busy and focused instead of drowning in self pity. My kids are the best--I now lean on them more than they lean on me.

Another post will be up soon telling of my latest scan results and continued treatment. And, I will probably touch on other significant events that have and will be happening in my life.

Before I end I must extend a huge "Thank you" to one of my followers. She sent an email to me because she was concerned about me not posting anything since June. Her words helped me return to this blog and finish this post that I began in July. Someone caring is the best gift a person can ever receive. I am so thankful she took the time to tell me her thoughts and to check on how I am. It felt good to sit down and write again because the last six months have been hard. Once again, thank you, Michele.

Tuesday, September 25, 2018

Hurricane!



Words entering ears
Grabbing and shaking
Is this real?

Preparations take place
Direct hit?
Complete miss?
Anxiety abounds

Hours turn to days
Words confirm the worst
Impending doom
Becoming reality

Rain falls harder
Along with the tears
Winds blow stronger
Taking all sense of control

The storm quiets
Destruction seen
Trees no longer standing
Power gone

Trees along the fence at front of our property

Grass covered land
Now holding water
Rising higher and higher
Will it stop? 

The back of our house in the aftermath of the storm

Shingles of protection
Winds ripping away
Roof no longer defending
All things underneath

My husband, stopping the leaks

Rain and wind pounding
Changing the structure
Never the same

Effects now visible
Attic items moved
Away from the water
Dripping . . . dripping

A foot unexpectedly
Stepping
Through a wet ceiling
Not falling
Into the the room below

My entire leg fell through. Luckily the rest of me did not.

Mold growing and spreading
Insurance claims
Repairing, rebuilding
Takes time

Our garage ceiling

More destruction follows
Rivers incapable of containing the swell
Breaching the banks

Holland Shelter Restaurant in Pender County

Killing people and livestock 
Destroying homes
Leaving people and pets
Displaced, now homeless
Hungry and wet

Posted on Facebook by Pender County Emergency Management

In the aftermath
Harm continues . . .

Mosquitoes breeding exponentially
Larvae becoming pupae
Emerging from watery wombs
Relentlessly attacking
Upon opening the door
Forcing refuge
Away from the swarm

Hurricane gone
Help arriving from everywhere!
Bringing calming relief
Thankful for all

Pender County Emergency Management Posting

Is this story about hurricanes or cancer
I wonder?

Thick with similarities 
The winds of uncertainty
Never stop blowing

Cells 
Growing into a frenzy
Destroying, killing
Treatments flowing through blood
Changing, damaging
The body 

The onslaught of either
Resembling watery roadways
Impossible to maneuver
Causing cancelled infusions
Medications delayed
Possible progression
Potential for death

As with a hurricane
Time moves forward
Coping mechanisms kick-in
The winds of acceptance
Ebbing and flowing
Depending

For some
Unfortunately
Stormy conditions remain
Long after its landing
Leaving us searching
For that showcase of hope
In a beautiful rainbow
That the flooding will stop

Clouds moving on
The sun peeking through
Shining life into all
Once again

My front yard before hurricanes Matthew and Florence destroyed the trees along our fence.



Wednesday, May 17, 2017

In Defense of Sympathy

gograph.com

When I was in high school, a friend telephoned to tell me a boy we knew had been killed in a car accident. He was 17. I remember putting down the receiver unsure of how to feel. It seemed surreal.  I had never experienced the death of someone I had known so well. I remember feeling sadness for his sister, his parents and for him, but otherwise I felt lost, almost empty.

For a long time I have been steadfast in my belief that empathy meant one person had a similar experience with another allowing each to better understand what the other was going through, emotionally. Today there is no doubt I would know exactly how to feel if that same friend called to tell me our friend had died. I am aware of the pain that comes from my knowledge of it. That, to me, is empathy. Sympathy, on the other hand, meant that a person had concern for, cared about, and had emotions about what another was going through even though the person feeling sympathetic had not have experienced a similar event.

Over the last few years when I hear or read of someone using the word empathy instead of what I think is the more appropriate word, sympathy, I would say to myself, “Why isn’t the word sympathy good enough?”  So, I decided to do some research. What I discovered about these two words, especially empathy, was surprising.

The word empathy is relatively new to the English language. It was introduced in 1909 by the British psychologist Edward Bradford Titchener who translated the German word Einfühlung into our English word empathy. The word at its inception gave people a way to describe the experience felt while viewing visual arts; it described a kind of tapping into the emotional aspect of that viewing. From there its meaning continued to take on a larger role in explaining people’s emotional lives and connections we have to each other.

In my research, the surprise I encountered was there is not a wholly agreed upon definition of empathy. It varies from the meaning of sympathy being flip-flopped with the meaning of empathy to using one’s imagination and everything in between. After much reading I must confess that my definition may be outdated. Even though my meaning of empathy needs some tweaking in order to be in sync with the zeitgeist of our times where empathy involves using the imagination, I still believe my definition is the better one because merely imagining yourself viewing an experience from another’s viewpoint has its limits; those limits are defined by the experiences we have had. I also believe sympathy has a role to play as well, a larger one than it now plays.

Though I do agree that the definition for empathy of imagining oneself in someone's shoes is not a completely wrong idea, the 18th century philosopher and political writer Adam Smith’s words in his work The Theory of Moral Sentiments (1759), here, caused me to rethink the contemporary meaning of empathy. Though he wasn’t talking about the word “empathy” –because it wasn’t yet used—he did describe humans projecting “our feeling into other forms in order to experience ourselves.” He wasn’t talking about seeing an experience from another person's point of view either. Instead he was explaining how we learn about ourselves through someone's experiences. That sparked a flicker inside my mind about empathy. I decided to take his idea and change it to offer what I think is a better definition for empathy. (Hey, with all the different definitions floating around I decided I can come up with one of my own.) Here is what I think: when empathizing, people are projecting their own emotions onto a person therefore they are not seeing it from the other person’s point of view but from their own. It is, at least to me, impossible to understand completely what another person is feeling. Humans do in fact project emotions onto lots of things, not just people. Take a look at advertisements about abused animals, or the fact that some of us hate to kill bugs as we watch them swirl around in the toilet after flushing. Others feel sadness if a plant dies especially when weeding out the little seedlings to make room for a healthier plant. Children worry about stuffed animals being left alone probably because they don’t like to be alone themselves.  We can’t feel what those life forms or objects feel--yes I know objects don't feel--but we do project what we might feel if we were in their position. That I believe is a much better definition for today’s use of the word “empathy”.

Over time, empathy has become the favored term over sympathy. Sympathy was used to describe our moral compass; if a person thought a behavior of another was bad then it was considered morally wrong. Empathy explained the emotions felt by those same behaviors. Eventually more people than not believed this word had the meaning I am most familiar with, one of knowing what an experience feels like because of having had a similar experience. Then came the push to persuade people that the word is about imagining being in the skin of someone else and seeing it from their point of view rather than from your own.

People advocating for social change began using this new imaginative idea extending from empathy's new definition. They were  hoping to improve the lives of those in poverty, improve working conditions, and help those who were ill or perhaps ostracized from the larger social networks. By talking about empathy, attempts were made to open people’s eyes to the fact that though that person doesn’t talk like you, look like you, or act like you, they are still a person with feelings and desires just like you. The idea is if people can create more of a “shared” connection to others a change in their behaviors would cause them to take action to better those people’s lives.

Our educational institutions took up the challenge of changing behaviors to better our world through empathy as well. Reading novels is supposed to create a connection with the characters and young readers. It does show readers that people have endured great sadness during wars, plagues or of governments mistreating their people. It does allow them to see a place in the world that might be completely different than the one they reside. But, it is clear to me that empathy is a process. To truly understand another person's hardship or even joy, you must live it yourself or at least experience something similar. I can tell you someone is probably scared traveling across a border to get into America illegally, but I can only guess what fear they are feeling having not experienced anything similar in my life. Seeing it from their point of view then is impossible. When I was a stage I breast cancer patient, I could imagine how I would feel if I became stage IV, but none of that prepared me for when I did become stage IV. It was much harder than what I thought it might be. I had projected my feelings onto each person who seemed worse off than I while sitting in the waiting room eventually to be seen by my oncologist. I still had hope at that time so my inexperience clouded my thoughts of their reality.

Currently my daughter and I are reading the Red Umbrella by Christina Diaz Gonzalez which is about two children whose parents send them to America to escape Cuba at the beginning of Fidel Castro’s regime in 1961. As I was reading aloud one afternoon, she saw me become emotional when the parents told their children they must go to another country for a while, alone. While I was tearing up and my words were breaking, she looked at me. I could tell she could not feel the same emotion I was feeling for these characters. She could not feel the pain of the parents having to send their children away nor feel how afraid those children felt being sent away. How could she? She has never experienced anything remotely close to what these people were experiencing. Though I cannot possibly get into the skin of those parents in the story, I do have children and have been afraid of losing them in a crowd or in some horrible accident. Was I feeling empathy or maybe a mix of sympathy and empathy for the characters? Was my daughter feeling sympathy with no life experience to feel anything else? And, does it matter what feelings we were having as long as both of us knew that people should be treated respectfully; that we should do what we are able in order to help people when we can. Not just on the big issues such as refugees but on the day to day contact humans have with one another.

Unfortunately, I think an unintended consequence has occurred due to the current political climate in regards to empathy. It may in fact be pitting people against each other. Choosing sides and wanting to produce change through anger seems wrong. I agree with Paul Bloom here  and Jonas Goldberg here that we can get so caught up in the empathy for one person that we can forget to be empathetic toward another. Think about this for a moment: if insurance pays for a treatment for one person, it may mean another receives no treatment at all because money is finite. If I say all refugees should not have an open door to come into America then I am labeled as evil instead of seen as caring about American citizens. It doesn’t mean I don’t care about refugees, it just means I am ALSO concerned for a different group of people, the group of people in my country. If we include young women with stage IV in a particular group because their needs are different than someone who is 50 or older than we are placing more importance on those particular individuals. When people take or give something for themselves or others, someone else loses that something. I think many people forget that. Our lives each have a price tag. If we insist that money be spent on one individual or one particular group of people then someone will suffer. I don’t like it, but it is reality. The choosing of who gets what is so difficult.

Sympathy may be the only thing we ALL can feel. Why can’t that be enough? Does it make us feel better about ourselves if we pretend to know how another feels in any given experience? Maybe it does; maybe it doesn’t; does it even matter?  Sympathy doesn’t mean we have no feelings about the person or their situation. It doesn’t mean we don’t want to help. Sympathy may be all that is needed to facilitate change. We can make change happen because we know what it is to simply . . . feel.




For some not so light reading, these websites will provide wonderful information to ponder.     

http://www.branchcollective.org/?ps_articles=rae-greiner-1909-the-introduction-of-the-word-empathy-into-english
https://www.psychologytoday.com/blog/hide-and-seek/201505/empathy-vs-sympathy
https://www.theatlantic.com/health/archive/2015/10/a-short-history-of-empathy/409912/
https://www.opendemocracy.net/transformation/roman-krznaric/welcome-to-empathy-wars