Showing posts with label October Breast Cancer Awareness. Show all posts
Showing posts with label October Breast Cancer Awareness. Show all posts

Wednesday, October 31, 2018

Remembering Diagnosis #1 and #2

One thing is certain: I don’t need October to remind me of breast cancer. It is in my mind when I wake up in the morning, throughout the day, and in my mind when I fall asleep at night. But this October I got the added bonus of TaTa Tuesdays and check your “BOO”bies. To say those cutesy names annoy me would be a gross understatement.

Today I say goodbye to October. Tomorrow is hello to November! I get to prepare for birthday #54! Truly excited for that day.

On this final day of Breast Cancer Awareness Month, I will leave you with two entries that I found while recently looking through my old journal. I was a much younger me (13 years ago), so full of hope that I would be okay after my first and second diagnoses before things dramatically changed in 2013. Today, I am still hopeful.  After all, hope is all I have when it comes to my tomorrows. That is true for all of us, cancer or not.

From My Journal:
April 25, 2005. (Before I went into surgery)
Words to my children--ages 10, 10, 9, 2.

I’m writing now so you don’t forget that my whole life has been worth it because of you.
I write this on the following pages so you know what I experienced. Maybe it will help you understand what happened to me if I am not here to describe it to you.

Last June I experienced some pain just above my areola on my right breast. The pain was a pinching sensation that would come and go. The feel of my breast was not lumpy, but firm on the top. (I had an enlarged lymph node too.) A mammogram and an ultra-sound were clear. I was told it was most likely caffeine causing my pain. I went on with life until a woman told me about her cancer diagnosis and the bi-lateral mastectomy that occurred because of it made me wonder. A week or so later the pain started occurring again—the same pinching sensation almost like my breast was beginning to let-down milk for a nursing baby. I began feeling for lumps. Still had the same firmness as before. I did feel a little BB sized knot in the area of pain. I pressed and to my astonishment some milky fluid came out of an opening in my nipple. The fluid was yellowish, greenish and thick and a little sticky.

I made the appointment. with my doctor for Monday March 28th. (2005) She sent me to get an ultra sound and a mammogram--again. Those were scheduled for Thursday March 31st. She also suggested I see a breast surgeon. On Monday, April 4th, I was told the results were clear including the lymph node I was worried about. The next day I saw the breast surgeon. She was quite concerned about the “mass” located at 12 o’clock on my right breast. A biopsy was done in her office. Because the hole from which the tissue was taken wouldn’t stop draining, (the same yellowish, sticky substance) the doctor seemed relieved thinking it might be a delayed mastitis. (Really, though? It is 2005. My last child was born 2 years ago.) It drained until 3 am. On Wednesday, she called to say that there were atypical cells found and that the biopsy would be sent to a lab for further evaluation. I could do nothing but wait.

So we went to visit my sisters in Kentucky as planned. Just before we were going into Mammoth Cave the call came from the breast surgeon. Greg fumbled with the phone. The call was dropped as the cell signal was weak. I tried to call her back but nothing. We drove around the parking lot until we had a signal. Through my tears I somehow heard I had Ductal Carcinoma in Situ—cancer in the ducts of my breast--and that I would have to have a mastectomy. She said the diagnosis wasn’t 100% for sure, but she felt confident.

After returning from our trip, on the April 14th, I went in for a 2nd biopsy. More tissue was taken and after 5:00 that day she called to confirm the diagnosis.

On Monday the 18th, I went to see a plastic surgeon. Tuesday I went back to see the breast surgeon. She went over the amount of tissue she was going to take. The plastic surgeon would follow behind her and insert the expanders.

Friday, I was informed that surgery would be performed April 29th. (Things moved quickly.)

All kinds of emotions flow through you with this type of news. Mostly you cry because you don’t want to die and not see your kids grow-up. That is my biggest fear. Other people seem concerned about re-construction. All I care about right now is waking up from the surgery, going home and recovering. I am so scared and worried that cancer cells will be in my lymph node, and I will have to go through chemotherapy. So be it if I don’t have breasts. All I want is my life to spend with my family. I am so lucky to have you. Your daddy has given me so much. Sometimes I don’t tell him enough how much I love him. He has given me everything I have ever wanted or needed.

I love you all.

Dec 31, 2010 (Diagnosis #2 Stage 1, November 2009)

It is about 8 minutes till 12 midnight on New Year’s Eve. This year has been the hardest of my life due to chemo, radiation and Herceptin for a year. My treatments ended Dec 16th with my final Herceptin treatment. On Dec 17th, my port was removed. I am grateful it is over. PET scan showed no cancer!

4 minutes now to go and I am looking forward to a wonderful year. I will try to curse less, and realize that nothing is worth the kind of stress I often experience. The only times worthy of stress are due to the death of a loved one and a diagnosis that could end your own life. I will try to keep that in perspective when things go wrong in my life. 

A bad day is not a bad day when it is a day I lived.

3 seconds. Happy New Year! It is here!


Thursday, September 18, 2014

Set the Peckers Free and Other Nonsense

Warning:  Graphic image below

Ah, autumn, it brings cool breezes, multi-colored leaves, and . . . breast cancer awareness messages.

So, it was no surprise when this appeared on my Facebook news feed recently. I decided I could not let it go without trying to educate at least the poster of this picture about why this promotion is upsetting to me.


The conversation went something like this:


Me: Most everyone is aware of breast cancer. October 13th is also Metastatic Breast Cancer Awareness Day. Metastatic Breast Cancer is incurable - deadly. This advertisement sexualizes a deadly disease and neglects the seriousness of it. Keep your bra on. Donate instead.

Female #1: If this day causes someone to donate a $1.00 then it is ok by me.

Female #2: Well, that day should be interesting.

Me: This advertisement does not make anyone aware that 30% of early breast cancer patients will become stage IV – the deadly stage. I lost my breasts 9 years ago, so I can tell you there is nothing fun or freeing about breast cancer. I am now stage IV. Every time I see this image it angers me because it sends the wrong message.

Poster: Oh, I am sorry. I did not mean to offend you in any way.

Me:
In no way did I consider your posting of this message to be mean spirited. I only wanted to make people aware that there is another side to this.

Poster:
I'm so glad you did, Lisa, You hit a mark that is so true, and I was missing it entirely. Thank you again, Lisa.  

Then this response appeared:
 

Male: OK...What if they would do one for Men's prostate cancer. Do we get to walk around with our pecker hanging out? Before anyone gets upset, if you don't joke about something or have fun it will kill you. I am epileptic and I am just glad when I have a seizure I don't wet my pants...lmbo Humor is the best medicine for anything.

Clearly, this person is in the dark about stage IV breast cancer with his words “if you don’t joke about something or have fun it will kill you”.  My lack of humor is not what is going to kill me.

After, rereading his comment I wondered,: am I missing the humor of this promotion?  Since I no longer have breasts -- just cold, round, fake, immovable illusions – for me the activity of releasing my breasts from whatever binds them wouldn’t feel or look quite the way I think the promoters were hoping. For those women living with an intact cancerous breast -- for stage IV patients at initial diagnosis the breast is not always removed -- I am confident having their breasts jiggling around for people to see would be the least appealing way for them to actively participate in an awareness campaign. Humor and cancer -- hummmm . . . nope, I still don’t see it.

I decided not to respond to the comment-er. His lack of sympathy and ability to comprehend what I wrote was apparent. Any attempt on my part to explain my opinion most likely would have been useless. The writer clearly does not have a body part that has set the course for his ultimate demise.

So I helped one person understand, but the other is still out there thinking: No Bra Day is just plain fun.


If I had responded it might have gone like this.

Me:
I would much rather worry about peeing in my pants than worrying if my next scan will indicate I am close to death. Would you feel the same way about humor being your best medicine if you had, using your word, “pecker” cancer which is called penile cancer by the way, and although rare, does happen? I am betting you would have your penis amputated in hopes that your life would not end sooner than you ever imagined. Your relationship with your penis would be changed forever. I don’t believe you would want your penis dangling free in your most comfortable pair of  shorts while you enjoyed how freeing it felt.

Would pictures like the one below help him understand the seriousness of cancer? I don’t think any man or woman finds penile cancer sexy or fun and certainly not beautiful. That should be the same for breast cancer.



When he asked, "Do we get to walk around with our pecker hanging out?" I wondered if there was a sexualized campaign using slang words and images of healthy-looking people for cancerous male sexual body parts. So I did a little internet investigating. What I found surprised me.

My penile and prostate cancer awareness campaign searches did not generate the same type of slang word usage as is found with breast cancer. Then again dick and cock are words used for undesirable guys, so the effect would not be the same. There were words about awareness and the typical ribbons with their designated colors -- nothing sexual at all.

However, testicular cancer did.

The first website I discovered was "feelmyballs" - The Testicular Cancer Awareness Project. http://www.feelmyballs.org/check_yourself.php

Another one at http://singlejingles.org/  for the Testicular Cancer Foundation had the slogan “Man Up - Check’em”. On that webpage is a round symbol with “Be Ballsy” across the middle. Is that cute and funny?  I bet someone living with testicular cancer doesn’t think so. Those words do nothing but trivialize the disease. It has the same effect as the slang vocabulary used in awareness advertising for breast cancer.

Facebook’s testicular cancer page has this . . .


And then there was this at www.theboys.org for Testicular Cancer Awareness.

Remember boys, get your bracelets and proudly wear these words “Don’t be a punk, check your junk”.








And finally, I almost FORGOT what I was looking for when I found this on Youtube about testicular cancer.







Cancer advertisements should educate and inform. It should not cause a person to think about sex.

Men are not solely to blame for these advertisements. Women are responsible too. Our society glamorizes woman who prance around willingly allowing their body parts to gain them attention, and for some it can be quite lucrative. Jennifer Lopez, Nicki Minaj, and BeyoncĂ© are at the top in popularity because of their scantily dressed figures – oh yeah, they sing too. When gracing the Red-Carpet, America’s female actresses are spotlighted if they appear in gowns that are clearly meant to promote them as sexual objects. Side-breasts, cleavage, almost the entire breast except the nipple are revealed from every angle. Stars do not have to be half-naked to be appreciated, but as long as people continue to profit from promoting sexual body parts and people find this acceptable, this practice of using sex for disfiguring and life-threatening diseases will never end.

In the meantime, I and many others will continue to express our opinions about the inappropriateness of “Save the Tatas”, “No Bra Day” and "Love my Nuts". Perhaps someday enough voices will be heard and people will change their attitudes about sexualizing advertising in the guise of cancer awareness.

Setting body parts free helps no one.